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DATAETHICS
Summerschool & Winterschool

Winterschool 2023

DATAETHICS winter school 2023
ETHICAL AND REGULATORY CHALLENGES IN THE ERA OF OPEN SCIENCE:
Data Sharing in Life Sciences & Health
23 January - 27 January 2023
hosted at the Leiden University Medical Center, the Netherlands followed by a short virtual collaboration on a flexible schedule
The call for applications is now OPEN
Deadline for submission of applications: 17:00 CET on Sunday, 4 December 2022
APPLY NOW

Theme Summary
The potential of big data coupled with the big strive for open science opens up regulatory and ethical challenges for the development of EU health research. Due to the increasing importance of the exploitation of data in health domain (for example – but not only – in the case of a pandemic) and to exploit the full potential of health data, the establishment of the European Health Data Space is being discussed and the notion of Open Science and Data-sharing acquires new dimensions.
While looking at what the brave new world might look like, we will explore how to frame research in this changing landscape that requires a greater exploitation of medical records, the extensive sharing of research datasets, and the introduction of new technologies such as Artificial Intelligence (AI). These concepts challenge our existing ethical and regulatory frameworks based on individual rights and new concepts emerge to frame a new bioethical paradigm based on the balance between individual rights and public value. Patient’s data are used and reused for many different purposes and common concepts as ethical and control oversight, as well as informed consent require revision. Issues to be addressed include FAIR access, control, privacy, transparency, security, accountability and justice. Coupled with a focus on the development of safe spaces to use data for health in EU, we will present hands on experiences and potential solutions for researchers.

REQUIRED DOCUMENTS

• Electronic Application Form
• CV
• Motivation Letter (minimum 200-300 words explaining the predicted impact of the participation on the Candidate’s academic/professional career).

Candidates should complete the online Application Form and together with the annexed documents, submit the application following the guidelines indicated in the online form.

APPLY HERE
Deadline for submission of applications: 17:00 CET on Sunday, 4 December 2022
Further information: https://www.dataethics-eurolife.eu/events/dataethics-winter-school-2023/

All applicants will be notified on the selection results by 25 December 2022 through personalized email notification.

Contact persons at the MUI:
Univ.-Prof. Dr. Christoph Schwarzer           
schwarzer.christoph@i-med.ac.at
and
ao. Univ.-Prof.ⁱⁿ Dr.ⁱⁿ Gabriele Werner-Felmayer
gabriele.werner-felmayer@i-med.ac.at